Our mission is to provide advice on research, diagnosis, treatment, and education related to rare diseases.
In 2022 the Colorado General Assembly passed SB22-186 to establish the Colorado Rare Disease Advisory Council to provide recommendations to the General Assembly.
The Colorado Rare Disease Advisory Council (RDAC) is composed of qualified professionals and people living with rare diseases that serves to educate medical professionals, government agencies, legislators, and the public about rare diseases
The RDAC gives stakeholders an opportunity to voice their experiences and give recommendations to state leaders on these critical issues.
In 2022 the Colorado General Assembly passed SB22-186 to establish the Colorado Rare Disease Advisory Council (RDAC) to provide recommendations to the General Assembly.
The Colorado Rare Disease Advisory Council (RDAC) is composed of qualified professionals and people living with rare diseases that serves to educate medical professionals, government agencies, legislators, and the public about rare diseases as a public health issue. The RDAC gives stakeholders an opportunity to voice their experiences and give recommendations to state leaders on these critical issues.
COVID-19 is the disease caused by the 2019 novel coronavirus, SARS-CoV-2. Coronaviruses are a large family of viruses that are common in humans and many different species of animals, including camels, cattle, cats, and bats.
GARD is a program of the National Institutes of Health that provides free access to reliable, easy-to-understand information about genetic and rare diseases.
Here at Living With Superficial Siderosis, we’re more than just a website – we’re your companions on this journey.
