Rare Alone. Powerful Together. 

Meetings & Events

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For accommodation requests:

rare disease advisory council members

Coming Up

December 14, 2026

November 26, 2026

November 9, 2026

Past Meetings

Contact Us

The Rare Disease Advisory Council welcomes comments from the general public during each meeting. Any member of the public who would like to offer a comment at a meeting may do so during the Public Comment portion of the agenda. Unless otherwise called upon to testify to the RDAC, members of the public are requested to limit their comments to the Public Comment portion only. 

How to Provide Public Comment at an RDAC Meeting

  • Verbal Public Comment: To provide verbal comments, please fill out the Google Form prior to each meeting. Public comments will be limited to 3 minutes per person.
  • Written Public Comment: To provide written comments about general RDAC business or agenda items, please email co.rarediseaseadvisorycouncil@gmail.com. Written comments will be accepted up to 48 hours prior to each meeting. Comments submitted after the 48-hour deadline will be considered for the following meeting.