Rare Alone. Powerful Together. 

Overview

The Colorado Rare Disease Advisory Council (RDAC) is committed to connecting individuals, families, caregivers, healthcare professionals, and community partners with trusted information and resources related to rare diseases. The resources featured on this page are intended to support education, awareness, access to care, advocacy, and overall well-being for those impacted by rare diseases.

Resources are provided for informational purposes only and may include materials developed by government agencies, nonprofit organizations, healthcare institutions, advocacy groups, and other subject matter experts.

colorado resources

Resource Review

Resources are reviewed and updated periodically to help ensure the information provided remains relevant, accurate, and useful to the rare disease community. The Colorado Rare Disease Advisory Council strives to include resources that offer comprehensive support across a wide range of rare disease topics and needs.

 

Exit Notification and Disclaimer Policy

  • Links to websites that are not maintained by the Colorado Department of Public Health and Environment (CDPHE) or the Colorado Rare Disease Advisory Council (RDAC) may be identified as external links.
  • External links are provided as a convenience and may direct users to additional information from organizations and authorities with expertise in specific subject areas. 
  • CDPHE and the RDAC do not control the content of external websites and cannot guarantee the accuracy, completeness, relevance, or timeliness of information found on those sites.
  • The inclusion of an external link does not constitute an endorsement by CDPHE, the Colorado RDAC, or any of their employees, members, or partners of the sponsoring organization, its products, services, or viewpoints.
  • When you leave this website and access an external site, you will be subject to the privacy and security policies of the destination website.